UH OH...Summer is ...

Oh my goodness... It's AUGUST!! Where has the time gone?! I hope that you are all enjoying the summer as much as I am! I apologize (again!) for so very much time having passed since writing. Truly, we have been enjoying the amazing weather and the great activities that summer in New England offers. One of my favorites is biking. My husband I purchased new bikes this year. Let me tell you about mine... It's made by Specialized and has 21 speeds. This model is a hybrid style that can be used both on- and off-road. (We bought our bikes from Family Bike, East Longmeadow. The technicians there were fantastic about making my accommodations, offering suggestions and getting me on the road!) We had the rear brake lever and the rear sprocket shifter moved to the left handlebar so that I can more easily control the speeds, and more safely use the brake system. I have been practicing using my terminal device (the Adept, by TRS) to rotate the right handle grip. Although my system is not perfect yet, my adaptive strategies continue to evolve and this is the best set-up I've ever had. You will also notice that in addition to wearing my helmet (forget about fashion; safety first!) I also am wearing UPF 50+ skin protection sleeves (Coolibar, sold by the pair, multiple styles, colors) which protect my skin but also seem to keep my carbon fibre forearm from heating up, especially inside the socket. And I'm using a neoprene glove (Swede-O) with wrist strap to give my left hand and wrist extra support.

When we're not at work, enjoying family or riding our bikes, we're at the pool! We'll talk about swimming next!

Eve's Addiction Ad

           

I notice that this company has advertised on my blog. Although I have not (YET!!) puchased from them, they do carry some jewelry that I like. -You might enjoy it as well. This particular line is called Bali Design and it is made in ... you guessed it; BALI! I particularly like the silver and gold cuffs. The design is such that it has an opening and a hinge. There are no clasps to fasten! HALLELUJAH!!
One merely opens the hinged area and slides the bracelet on the forearm. This is wonderful for those of us with one hand, or those who are experiencing decreased fine motor abilities. Check out their website for yourself! This particular line is referred to as a Vintage Style Sterling Silver Cuff. http://www.evesaddiction.com/

Who says you can't teach an (old dog) new tricks?!

I have now "arrived" as a full-fledged adult.... I have a smart phone!  Probably most of you are well-experienced with this technology. I however, seem to have always been a late bloomer. And besides, I am a New Englander and we are known to be... shall we say, thrifty? My previous phone is not that old and was working perfectly fine. I could not justify spending the $$$. But all of that changed with Mothers' Day. I received my DROID as a gift and the dawn of smart technology arose within me! I love the phone, am learning about  'apps' and am trying NOT to become addicted to the technology. But it woos... it draws me. There are games and access to my e-mail accounts, my phone contacts, internet research.... My husband is citing neglect (just kidding).
But let me tell you about the cool simple technology that I've acquired to complement my smart phone. It's called Fly Grip and it's a holder that folds flat when not in use; expands to support my fingers so that my thumb is free to fly across the keys and access the world... or at least the internet and the telephone. I don't risk dropping my phone.Check it out:
I like to use my index and middle fingers in the flygrip holders and my ring and little fingers to support the device. But you can use it however you feel most comfortable and beneficial. You can get more info at flygrip.com... VERY COOL!!!!! So, who says you can't teach an old dog new tricks???

Lemonade

So, let's get back to this idea of a positive attitude.... to create a word-picture for you, I'll use the idea of making lemonade from the lemons handed to each of us by.... well, the challenges of life. We all have them (referring to challenges!) whether we have 2 hands or not. What matters is what we do with the challenge. Have you ever thought about your strengths, abilities or talents? If you don't use them, they will not continue to be a strength to you. Challenges are not much different. If you don't face them, deal with them and learn to work around them, you will not be strengthened. By exercising* (i.e. learning a 'work-around' to) your weakness, you actually exorcise (eliminate) your weakness and in that way, the challenge actually becomes a strength. Simply stated, our weakness can actually become our strength.
Many times people who do not know me will make initial  statements such as this: "Oh, how terribly difficult to go through life without a hand" or "You poor thing..."
If I had not been born without my hand:
1. I would not likely be an occupational therapist (for the past 34 years) ;
2. I would not likely have conceived of the idea for the cutaneous anchor technology to change access to body power without harnessng in an upper extremity prosthesis;
3. I would not have started this blog that now circles the globe;
4. or the company Single-Handed Solutions that offers creative solutions in simple technology and adaptive strategies.
Although I don't honestly know if I would actually CHOOSE to not have a hand, what I do know is this:
1. There are far worse things one might endure than not having two hands;
2. Some of my most difficult life experiences had less to do with not having two hands and were more related to not making the best choice;
3. I am not a 'poor thing'...
I am blessed with a wonderful family and my life is rich with meaningful relationships. I have employment that is more than a job; it is a ministry and an opportunity to make a difference in the lives of others and in our world.
Lemons, anyone? They are an opportunity to make lemonade... or even occasionally limoncello!

Attitude!

Let's talk about attitude! When I use that word, I'm referring specifically to how we carry ourselves... the image that we project, the message that our body language sends to others. As a little girl, I would often walk with my arms crossed in front of my body, my left hand holding my prosthesis at the elbow. To my parents, this gave the appearance that I was hiding my prosthesis or that I was ashamed of it. As I reflect about this now I know that it was less about hiding it.... I didn't have enough 'world experience' to be hiding it.... it was about balance and the integration of my lengthened prosthetic extremity with the rest of my body. If our trunk is the core, that is where we perceive stabilization; I remember that feeling of 'unbalance' and that by holding myself close to my core, I felt more stable, physically balanced.

So, what does that have to do with attitude? Well; I'm getting to that!!! I often refer to my parents as visionaries... When I was born, sans right forearm, they had a vision that I would be every bit as able and capable as the next person... or even more (yes, my parents expected personal excellence from each of us). There is a scripture that says... "without a vision, the city perishes"... so for success to occur, we must have a goal that we strive to achieve. There is no one way to achieve the goal, but many; and some of the ways are better than others. Throughout my childhood, my parents would work with me on my posture: not slumping forward, not leaning to one side, feet pointed forward, feet shoulder-width apart, head held high, looking forward not down; and eye contact. Did I mention the smile? All of these factors are beneficial for a growing musculoskeletal system, but are also vital to a developing body image... no matter what the age, no matter what the onset of limb loss. My parents were so focused on the vision that they had that they pursued and even created opportunities for me to achieve and to acquire the vision for myself.

How did they do this? BY EXAMPLING the attitude of meeting life and its 'situations' head-on with feet firmly planted, head held high and eyes focused. Yes, and with a smile! There was no problem, whether it was  learning to cut with scissors (only right-hand scissors were available in schools in the 1960's; I do not have a right hand and my parents had to find left-hand scissors... or even if they existed! Ha ha; there was no internet then to 'google' resources!); devising a method to hold a pick in order to play guitar (thanks Dad!); enrolling in a 'finishing' class during awkward adolescence  to pull it all together (thanks Mom for the "Sitting Beauty" program!) or recovering from rejection of others because I was 'different'... any disappointment was met with the same objective: overcoming the challenge. So, I've introduced to you the importance of a vision and the influence of a positive attitude.... stay tuned, next we'll talk about that smile.... oh, and lemons!!!!

Recently Published Article on the Shriners Blog!

Debra A. Latour, M Ed, OTR/L, has worked at Shriners Hospitals for Children in Springfield, Mass for 13 years. Before she was employed by the hospital, she was a patient. Her parents sought treatment at Shriners when she was a toddler for an upper limb deficiency.
For many years, Debi used the traditional body-powered prosthesis which is activated by a figure-of-eight or a figure-of-nine harness system, using the opposite shoulder as the power source. Many users of this system complain of discomfort from the harness, typically the rubbing on the skin by the harness, asymmetry of the shoulders, pain in the opposite shoulder area, difficulty while performing tasks with both limbs, and diminished physical appearance. When Debi began to experience her own problems with the usual harness system, she relied on her 30 years of experience to solve her issues.
As a Senior Occupational Therapist, Debi knows exactly how to help patients develop skills needed to live as independently as possible and to help improve the quality of their lives. In an effort to achieve these goals for patients with an upper limb deficiency, she invented a new and improved way of harnessing a body-powered prosthesis called the Ipsilateral Scapular Cutaneous Anchor system (the “Anchor”). Her design eliminates the usual harnessing, often a source of complaint and one reason why children reject prostheses.
Debi submitted a paper on the “Anchor” to the American Academy of Orthotists & Prosthetists which was accepted for presentation at the 2011 Annual Meeting & Scientific Symposium in Orlando, FL.  Presentations such as this serve to inform professionals in the community of new and creative solutions in treatment and also promote Shriners Hospitals for Children as a center of innovation and excellence in treatment, research and education.
While attending the symposium, Debi was interviewed by a reporter for O&P Business News.  She provides a wonderful account of how her invention and her blog, Single-Handed Solutions, materialized. Watch for the link soon.

How Do You Do...Fastening a Watch?

Watches can be found in several different types of styles, with very different watchbands. Of course, I love a nice-looking watch! But there are two very distinct features that I seek in a watch. First, I need to be able to see the numbers on the face. I typically look for a watch with a large face or with easy to read numbers. Since I am a health care professional, I also like a second hand. The second feature I analyze is the clasp fastening. It has to be a type that I can do by myself and without taking alot of time. My favorite "work" watch is made by Invicta with a two-tone stainless steel hinged bracelet clasp. Unfortunately I recently broke one of the links. These are my other two favorites. One is a typical buckle style fastener  (the brown one) and the other (the gold watch) has a double-fold clasp. I can fasten both of these watches pretty easily using  the prosthesis (either the hook or the Adept terminal device) or with my residual limb. Let's look at how I do this task. Please remember that these are descriptions of how I accomplish tasks. There are many methods and strategies to accomplishing tasks. It is my hope that this blog will serve as a springboard of thought and empowerment to others to find successful techniques that will work for you, your clients or your loved ones who might be experiencing challenges. So let's check this out...
Without a prosthesis:
First the traditional buckle style watchband:
Positioning is important for my success. I wear my watch on my left wrist and will typically support  my left forearm on my left thigh to stabilize the area so that I can best maneuver my residual limb. I 'grasp' the watch with the crook of my right elbow and position the watch on my wrist.

Then I manipulate the band so that I will be able to feed the end into the buckle.

Once it is through the buckle, I pull it the remainder of the way using the terminal end of my residual limb and my left thigh.

I use my residual limb  to push the strap though the placement holders once through the buckle

so the watch is completely fastened.

And now the double hinge metallic strap:
Again, positioning is a key to sucess. I drape the watch over my wrist using my residual limb. My left forearm is supported on my thigh to stabilize my arm during the task.

I align the strap onto the prongs of the clasp

and use my residual limb to push the clasp and hook it together

Then I push the second hinge over the first in the same fashion

And it's on!

With a prosthesis:
The traditional buckle watchstrap:
I drape the watch on my wrist, pinch the strap, push and then pinch and pull it to get it through the buckle.

And it's on!
And finally the double hinge watchstrap:
I grasp the watch with the terminal device and position it on my wrist.

I line up the hooks on the clasp and then pinch

Then I fold over the second hinge and repeat the process

And the watch is on.

I must confess that photographs give the appearance of simplicity. I have spent many hours practicing these techniques, beginning when I was very young. Don't be discouraged... any  skill worth acquiring is worth working toward with diligence! And being maximally functionally independent is a worthy goal.

Next to be published will be buttoning the cuff button ... Check back next week!!

In the meantime, be well, be blessed.

How Do You Do... Washing Dishes?

Now that we've done all of this cooking, we have a ton of dishes to wash! Believe it or not, washing dishes is a task I actually enjoy. It's my therapy!!!! When I was younger, my sister and I had the responsibility of clearing the table and washing, drying and putting away the dishes nightly. I didn't seem to love it then; probably because there were so many dishes and because there was no choice involved.  I recall telling my parents on one occasion that I could not wash the dishes and shouldn't be required to do so because the water would rust my hook. My father was quick to explain to me the scientific properties of aluminum (it doesn't rust) and sent me back to the kitchen. At the time, it was worth a try!
When washing dishes, I hold the sponge in my terminal device.

With the Adept, I use the Sure-Lock and it maintains the grasp for me.

If no prosthesis, I use either a dishcloth  draped over my residual arm  or I push the sponge with my residual arm and hold the dish in my hand. Glasses are easy... my shorter arm fits right inside the glass to wash it out.

When washing pans, I hold the scrubber in my hand instead and stabilize the pan or pot with my prosthesis or residual arm.

Drying dishes is accomplished by holding the towel in my terminal device or draped on my arm if no prosthesis.

That was easy... we made short work of the dishes!

How Do You Do... Cooking 201?

My husband loves to eat and I love to cook for him. Since I was chopping, mixing ingredients and indulging in a stovetop creation, we thought it was a great time to seize the moment and add to the blog. So, thanks to my husband Mike and his camera, we have the next edition to How Do You Do... Cooking! I also want to take a moment to speak about learning to cook. Like everyone else from my generation, I took the obligatory Home Ec in 7th and 8th grades. Unfortunately, Mrs. P's rigid lessons did not unleash any culinary desires -or talents- in my heart. That being said, I had a wonderful Chemistry teacher in the 10th grade (Mr. B!) who ignited my interest in creating and encouraged my tendency to use my prosthesis in inventive ways.
-The hook does a wonderful job holding test tubes over a bunson burner. Tonight I am making a pasta primavera with shrimp. I admit it; I'm cleaning out the refrigerator but it really did turn out good!
Before we get started, let's take a peak at some of my favorite cooking tools (though we may not use all of them in today's edition):
my non-skid mat (purchased at HomeGoods)

white anti-microbial cutting boards (Ikea)
one-handed pizza roller (Pampered Chef; used to cut more than pizza)

one-handed pie crust roller (ditto)

double-blade scissors/spoon (a gift!)

Kitchen Aid grater with lid (HomeGoods)

egg yolk separator (Pampered Chef)

bamboo tongs (Pampered Chef)

food pick (Pampered Chef)

And the cooking begins!
I place the non-skid mat on the counter with my cutting board on top of it. This keeps the cutting board from sliding around while I'm trying to chop. Then I use my forearm to stabilize the onion to cut off the ends...
With the prosthesis:

or without:

Then I peel the onion:

and then chop it:

Without a prosthesis, this is how I do it...

I am using my residual limb to push down on the blade. -It does look a little dangerous, but I am very cautious (and at this point in my life) pretty quick.
Add it to the saute pan -with olive oil, of course (and garlic, spices...)

I love the handle on my cutting boards. It's just big enough to slide my residual arm in place to grab the board. Now it's time to chop the tomato. Tomatoes are typically softer and can be squishy. -It's definitely an advantage to use my Adept over the hook with this task!

and certainly more difficult (but possible!) without...

It's even easier with the food pick:

Chop, chop, chop!!!!

Another way to chop is the double-blade scissors device:

And add it  to the saute pan:

Now to make the pasta. First, fill the pot with water. It's much easier to keep the pot on the counter if possible, rather than filling it in the sink and lifting it up onto the counter. I place it on a cutting board so I can slide the full pot over to the sink and then onto the stove.

Same steps without a prosthesis: slide the full pot on the counter and place the pot on the stove.

The pasta is done... To move the hot pot to the sink I keep the cover on and gently move it onto the cuttingboard and slide it over to the sink.

Without a prosthesis, I wear an oven mitt on my residual limb:

My colander has expandable handles that stretch over the sink and I dump the hot pasta and water into it...

Dinner is almost ready, but I need to open a jar of seasoning to add to my concoction

and then peel the shrimp...

I use the tongs for serving and hold my plate in my prosthesis  -or place it alongside the serving dish...

Bon appetit!
We'll have alot of dishes to wash in the next edition...